Early Onset Scoliosis
Posted by theratprincess
29 November, 2018 22:31
Our 8 year old son has recently been diagnosed with an early onset idiopathic scoliosis. He's wearing a spinal brace 17+ hours per day and may need to have one or two major spinal operations.
Bit of a long shot, but just wondering if there's anyone on here with a similar age child with the same condition who might like to meet up or chat?
Or have you gone through this yourself at a similar age or with an older child and have any experience or tips to share?
I'm a member of SAUK and have started exploring contacts that they've given me but there is no one local on their list.