Early Onset Scoliosis

[theratprincess]

Our 8 year old son has recently been diagnosed with an early onset idiopathic scoliosis. He's wearing a spinal brace 17+ hours per day and may need to have one or two major spinal operations.

Bit of a long shot, but just wondering if there's anyone on here with a similar age child with the same condition who might like to meet up or chat?

Or have you gone through this yourself at a similar age or with an older child and have any experience or tips to share?

I'm a member of SAUK and have started exploring contacts that they've given me but there is no one local on their list.

Many thanks.