Jump to content

Recommended Posts

I just wondered if anyone has any first hand experience of Hirschsprung's Disease?


We've read a lot of the the Google articles but I am interested to hear from anyone who has actually had the pull through procedure carried out on their baby and just how successful the outcome was.


Thanks


Px

Hello,

My name is Nicole Murphy and I have a group on FB called the "Hirschsprung's Disease Help Group." My icon is the one with the child holding the teddy bear. I am also the author of the book ?Hirschsprung?s Disease ? Solving the Puzzle.? Which also has a FB page. It has proven to be an invaluable resource for parents caring for children with Hirschsprung?s disease. My son Kellen was born with HD in 2003 and suffered multiple bouts of enterocolitis after his pull through operation.


You can read our story on my website: http://www.hirschsprungsdiseasehelp.org/

I am currently offering FREE SHIPPING on the book anywhere in the US. Shipping elsewhere is around $15.00 as I do ship overseas.

I am so excited about the new group and we have super helpful parents with lots of knowledge! I hope you will find some answers to your questions if you choose to join.


Sincerely,


Nicole Murphy

Hi Nicole,


Wow thanks for all this information. I hadn't anticipated I'd get a response from someone who'd actually written a book about HD!


I had already joined the FB page and found many of the postings really interesting and informative. I will definitely be getting hold of a copy of your book.


Thanks again


Px

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Latest Discussions

    • He did mention it's share of freehold, I’d be very cautious with that. It can turn into a nightmare if relationships with neighbours break down. My brother had a share of freehold in a flat in West Hampstead, and when he needed to sell, the neighbour refused to sign the transfer of the freehold. What followed was over two years of legal battles, spiralling costs and constant stress. He lost several potential buyers, and the whole sale fell through just as he got a job offer in another city. It was a complete disaster. The neighbour was stubborn and uncooperative, doing everything they could to delay the process. It ended in legal deadlock, and there was very little anyone could do without their cooperation. At that point, the TA6 form becomes the least of your worries; it’s the TR1 form that matters. Without the other freeholder’s signature on that, you’re stuck. After seeing what my brother went through, I’d never touch a share of freehold again. When things go wrong, they can go really wrong. If you have a share of freehold, you need a respectful and reasonable relationship with the others involved; otherwise, it can be costly, stressful and exhausting. Sounds like these neighbours can’t be reasoned with. There’s really no coming back from something like this unless they genuinely apologise and replace the trees and plants they ruined. One small consolation is that people who behave like this are usually miserable behind closed doors. If they were truly happy, they’d just get on with their lives instead of trying to make other people’s lives difficult. And the irony is, they’re being incredibly short-sighted. This kind of behaviour almost always backfires.  
    • I had some time with him recently at the local neighbourhood forum and actually was pretty impressed by him, I think he's come a long way.
    • I cook at home - almost 95% of what we eat at home is cooked from scratch.  But eating out is more than just having dinner, it is socialising and doing something different. Also,sometimes it is nice to pay someone else to cook and clear up.
    • Yup Juan is amazing (and his partner can't remember her name!). Highly recommend the wine tastings.  Won't be going to the new chain.
Home
Events
Sign In

Sign In



Or sign in with one of these services

Search
×
    Search In
×
×
  • Create New...