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Does anyone have any experience of Hirschsprung's Disease?

Princess

By Princess
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Princess

Princess

Posted
Posted

I just wondered if anyone has any first hand experience of Hirschsprung's Disease?


We've read a lot of the the Google articles but I am interested to hear from anyone who has actually had the pull through procedure carried out on their baby and just how successful the outcome was.


Thanks


Px

knbmurphy

knbmurphy

Posted
Posted

Hello,

My name is Nicole Murphy and I have a group on FB called the "Hirschsprung's Disease Help Group." My icon is the one with the child holding the teddy bear. I am also the author of the book ?Hirschsprung?s Disease ? Solving the Puzzle.? Which also has a FB page. It has proven to be an invaluable resource for parents caring for children with Hirschsprung?s disease. My son Kellen was born with HD in 2003 and suffered multiple bouts of enterocolitis after his pull through operation.


You can read our story on my website: http://www.hirschsprungsdiseasehelp.org/

I am currently offering FREE SHIPPING on the book anywhere in the US. Shipping elsewhere is around $15.00 as I do ship overseas.

I am so excited about the new group and we have super helpful parents with lots of knowledge! I hope you will find some answers to your questions if you choose to join.


Sincerely,


Nicole Murphy

Princess

Princess

Posted
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Posted

Hi Nicole,


Wow thanks for all this information. I hadn't anticipated I'd get a response from someone who'd actually written a book about HD!


I had already joined the FB page and found many of the postings really interesting and informative. I will definitely be getting hold of a copy of your book.


Thanks again


Px

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