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I have recently been diagnosed with the above but have found very little help with info. If there are any fellow sufferers that could point me in the right direction I would be v grateful. In particular I am looking for treatment options that does not involve a hysterectomy. Any recommendations of specialists would be great.

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I'm under Dr Mascarenhas at Guys and he has been absolutely brilliant. I've been offered a lot of treatment options for my pain but all have been unsuccessful for me. I'm awaiting a second round of surgery, I'm also diagnosed with Endometriosis too so they need to see how far this has come on since my last operation. I've been offered a hysterectomy for whenever I feel I want to take it, this was after exhausting all treatment options though.


This website http://www.adenomyosisadviceassociation.org and the facebook group associated has been of great help to me as I've found it very hard being diagnosed with 2 conditions within a year and other health issues too. I'm only 22!


Good luck, happy for any questions via PM.

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