Hi I'm in a very similar situation to you I'm 33 weeks pregnant and at my 22 week scan they also picked up a heart defect. The defect my baby has though is called double outlet right ventricle so different to your baby's. I had three scans at Kings and was the referred to St. Thomas's my first appointment there was last week, I had a scan with an obstetrician and then a booking in midwife appointment, everyone there seems so friendly and supportive. I have a meeting with a cardiologist called Dr Owen Miller in two weeks time he will be the one looking after my baby so I'm very excited to meet him and hopefully get some more info. My baby will be like yours placed in intensive care straight after birth, hopefully she won't need an operation until later on so will only be there for a few days maybe a week. The rest of her treatment will be at the Evelina children's hospital which is in St. Thomas's. There's a support group for parents of children with heart conditions who are being treated at the Evelina this is called Echo, they have a Facebook page which I have joined. I've found this incredibly helpful as I've been able to speak to people whose children have the same condition and were treated at the Evelina. They also do open days for parents expecting heart baby's. these open days are run by midwives they teach you the usual antenatal things and also show you around the hospital I'm going to the one on Saturday 18th May here's the link http://www.echo-evelina.org.uk/. Just know you're not alone and other people are going through the same thing, if you ever want to talk you're more than welcome to pm me x
