Breastfeeding help in ED

[Knomester]

Sorry to hear this Pickle. So good that you have an appointment so soon. Good luck and hang on in there.

[Fuschia]

Pickle, oh no.

Hope you can get it sorted quickly Nd get down to enjoying your baby moon!

[on_the_hill]

Pickle, sorry to hear your little girl may be tongue tie. Hopefully you'll get it all sorted on Sunday. Katie was very supportive and professional with us, hang in there, you're doing all you can!

[Pickle]

Thanks - having been through it before I'm a lot more relaxed this time, especially as I've caught it early. She seems to be feeding quite well despite it, and a lot of the different latch techniques I learned 5 years ago seem to be flooding back to me!

[amydown]

Resurrecting this thread as I think our 3 week old boy may have a TT. He makes this clicking noise when he is feeding and is in so much pain with wind having gulped in all that air. Is the fastest way to get a referral through visiting bf cafe or GP? A bit confused. Also, does anyone know what the waiting time for King's appointment is like? If the NHS route will take more than a week, I think we will go private as the poor lad is in so much pain. He only cries when hungry, after a feed before being winded and when having a poop.

Have found Ann Dobson who is a lactation consultant and does home visits to do TT snip too. Does anyone have any experience? Would consider Katie Fisher but trip to Croydon rather daunting as I haven't fully recovered from c section yet....

[simonethebeaver]

Ann Dobson is lovely. You'd be in good hands.

[buggie]

Don't know answer to your queries, but if you can get to 5th floor of Peckham Library this am (think its 10-1130) the breast feeding cafe runs & the midwives running it can check for TT and let you know what the NHS would offer. Hope all's sorted soon.

[amydown]

Thank you very much both.

[simonethebeaver]

You may already have left but I realised I could more helpfully last night have shared my experience! I met Ann Dobson at the TT clinic at King's, and found her far more helpful and sympathetic than Katie Fisher by the way. My daughter's posterior TT was spotted by my HV. She tried to refer me, we waited a week, and then she found out she couldn't refer. I then raced to a BF cafe that day, Wednesday, and the clinic appointment was the following Tuesday. However, the referral criteria include you trying a feeding plan first, which was considered for me to have been that week I waited fruitlessly, but you may find you're asked to see someone twice before being referred on the NHS.

Good luck. I found the whole thing extremely stressful so you have my every sympathy.

[Pickle]

I recently had to look into this for my new baby - I was told that going through the referral system at Kings could take 2 to 3 weeks. Going private was immediate (although feeding is now going really well so I have postponed). Having struggled for 8+ weeks with my first child and tongue tie my preference is definitely the quick option - ?90 is money well spent if it saves weeks of pain, depression and anxiety!

Good luck x

[amydown]

Thank you both. Tried to go to bf cafe today but with feeding and settling, still in bed! I have managed to leave a message for Ann Dobson to call me back so I'm hoping she can do a home visit soon. Pickle, in case was Katie Fisher's house in Croydon easy to get to? Am not very mobile at the moment but if we can't get a home visit, we will go to Katie's place in Croydon I think. He is gaining weight (has gained 400g a week after birth) so I am not hopeful of sympathetic diagnosis on the NHS... Maybe I'm too cynical!

[Pickle]

I didn't end up going there so not sure sorry - I know Mooncake went recently with her little one, try dropping her a PM.

P x

[Jacks50]

my experience with the TT clinic at kings was that once we had been referred there by the BF clinic, we were seen really quickly - I think within a week. And my daughter was feeding ok and gaining weight, and quite old in comparison to a lot of the babies they normally see, but they were (in my opinion!) quite keen to do the cut!

So unless they've changed a lot since we we're seen a year ago, if you are having trouble feeding and baby has a tt, they'll do the cut.

But if someone can come to your house to do it, sooner that you can get to a bf clinic, I'm sure that would be preferable!

Good luck

Hope it all improves really soon

[on_the_hill]

Hi Amydown,

We went to see Katy Fisher to her place in Croydon and it was easy to get to by car, not sure what it would be like by public transport. Her consultation room is upstairs, which I know is tricky to do when recovering from a c-section, but going to the hospital and waiting could also be as wearing. Very best luck getting things sorted.

[hellosailor]

In my experience the system at Kings means you have to be given the diagnosis of TT, but then wait a few days and have to get a SECOND diagnosis - even if by the same person a few days apart, Claire Kedves or Joanne Joseph etc - before you can be referred to the clinic for the snip. The bf specialists despair of this red tape but you have to do it. Once you have been referred to the clinic you should get the procedure within days, so weirdly it is the referral process, not the waiting list at the clinic, which can often delay.

I think that what others have said about it being ?90 very well spent to have the snip done privately is spot on - though I feel for you having to make the journey when still recovering. But then being at the TT clinic takes several hours so that would be a lot of hanging around in a waiting room which might be tough at the mo.

Good luck and let us know how you get on!

x

[amydown]

This thread has been an absolute life saver. I contacted both Ann and Katie initially and Ann didn't get back to me (must have had a busy day) but when I spoke to Katie to discuss us coming to Croydon, I mentioned that I had had a c-section and she offered to come to our house for an assessment which was so kind of her.

She has just spent an hour and a half with us for a full assessment and has written us the referral letter to Dr Patel (the surgeon that does the procedure at King's I think) and we are going to go and see him next week to have the procedure done on medical insurance to cut out the waiting time as Katie recommended.

I wish I had known more about TT the first time round - chatting to Katie about our older son's early days, we thought it was highly likely that he had a TT too. I just hadn't thought of it at the time as he was putting on weight and midwives seemed happy. Oh well. At least we got it figured out this time round!

[Pickle]

That's brilliant, I'm so pleased you've been seen already, and how fab that she came to you! I hope you get the operation done soon.

P x

[on_the_hill]

Really pleased to hear you are getting the help you need, so good of you to persevere! Glad the thread has been useful, I am ever so grateful to all the people who came here to give advice when I needed it.