Looking for a local chronic fatigue syndrome support group

[cbeck]

I am suffering from long Covid and chronic fatigue syndrome - does anyone know of a local chronic fatigue syndrome support group please?

[Guest]

There are a number of single consultants or dptmts / clinics specialised in chronic pain / pain management in all the main hospitals in SE London as far as I know where the issue of fatigue is usually thoroughly examined in relation to various conditions, but I do not know if they have been accepting also referrals for long covid patients. For what it is worth, I would check with your GP.

[cbeck]

thank you.

[Penguin68]

Chronic post viral syndromes are very common - typically after e.g. glandular fever and other viral infections (flu?) in some people. They have been given many names - ME for instance - and the very severe Guillain-Barr? syndrome, but they appear to have very many commonalties - particular muscular weakness and fatigue, as well as some (e.g. anosmia) which may be initial viral infection specific. I would not over-worry about finding a group which is just Covid-19 (long Covid) specific - most of these groups will be helpful at suggesting remedies or alleviations (and support) for many common symptoms.

[cbeck]

thank you for your thoughts - I wasn't clear enough in my original message but it's support around the chronic fatigue element of long covid that I'm looking for.

Penguin68 Wrote:

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> Chronic post viral syndromes are very common -

> typically after e.g. glandular fever and other

> viral infections (flu?) in some people. They have

> been given many names - ME for instance - and the

> very severe Guillain-Barr? syndrome, but they

> appear to have very many commonalties - particular

> muscular weakness and fatigue, as well as some

> (e.g. anosmia) which may be initial viral

> infection specific. I would not over-worry about

> finding a group which is just Covid-19 (long

> Covid) specific - most of these groups will be

> helpful at suggesting remedies or alleviations

> (and support) for many common symptoms.

[Sue]

Did you find the Facebook group I mentioned on your other thread useful?